Faces Of PTFK

Faces of PTFK

Children who are medically fragile live with rare conditions and complex disorders, such as Laryngeal-tracheal cleft, Larsen’s Syndrome, PTEN Hamartoma Tumor Syndrome, Smith-Lemli-Opitz Syndrome, Congenital Central Hypoventilation Syndrome, Apert Syndrome, immunodeficiencies, Leigh’s Syndrome, Spinal Muscular Atrophy, Lissencephaly, Microcephaly, Short Gut Syndrome, Gastroparesis, Cerebral Palsy, Chronic Pseudo Obstruction, Mitochondrial disorders, Polymicrogyria, Congenital Heart Defect, Hypoplastic Left Heart Syndrome, Rett’s Syndrome, Fragile X Syndrome, Down Syndrome, and many others.